…and we were still waiting.
My wife heard back from the doctor a week after the testing was done to see whether or not Alexa had Cystic Fibrosis, and the word back was that the test was inconclusive. They would have to do genetic testing to see whether or not she tested positive, and in the meantime we would have to keep waiting. Over a month later and we were still in that holding pattern, completing the treatments twice a day, and dealing with the weight of knowing we were one step closer to our child possibly having CF, something we were supposed to be “simply ruling out” with the initial test.
And during that time period we worried. What you need to know about my wife is that in our relationship she’s the worrier on the outside, and me, I’m the worrier on the inside. I might look like I’m doing just fine, but underneath the facade I’m freaking out. In fact, sometimes I just sit still and shake because I’m so worried. It happened when I was so worried that Madeline might have DS, but then when she tested positive for it it was okay. I was able to deal with it, and I figured that would be the same way with Alexa and the possibility of CF. The possibility worried me a lot more than the actual diagnosis, because if the diagnosis came back that she had it then I could make a plan, then I could deal with it.
But Heidi, she worries from the start, and it shows on her face and in her demeanor. Reading about all the issues that children with CF have, she had driven herself into the cycle of “what if.” And don’t get me wrong. I’m not saying her way of dealing with it is wrong. It’s just different how we approach things, but we eventually get to the same place. If that place is acceptance, then we work on it, and if it’s a sigh of relief then we sigh at the same time. We were both preparing ourselves for the possibilities during that month, just in our different ways. Continue reading “Disturbance at the Heron House: Volume 3”